Things seem to be moving along. Slowly, but moving. We had originally thought we might be out of the hospital today, but some fluid has collected on Lily's Skull and her brain so they are watching that. We could go home as early as tomorrow, but Sunday is looking a little more likely.
Physically, she's doing great. She's slept a lot today, but played all day yesterday with no nap. She's eating potato chips and chocolate chip muffins and cheerios.
The doctor confirmed for us today that the tumor was what they thought it was: pilocytic astrocytoma. We don't yet if chemo is an option or if they are going to just watch it. They told us a few weeks ago that chemo wasn't a great option for this type of tumor, so we will probably just watch the tumor site through frequent MRI's. We are still trying to stay in the now and play the "what if" game, but things are definitely in a better place than they were a month ago. At least now, we've got answers and action.
I'd like to write more, but I've been challenged to a game of air hockey, so I must vamoose!
-Mike, Liz and Lily
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