You're a good girl, and we love you.
Saturday, August 27, 2011
Saturday, August 13, 2011
Full Moon!
Lily and I went outside tonight with the iPad and the Telescope to view the Full Moon. We couldn't see a lot of meteors last night because of the cloud cover...but tonight was fairly clear with a few passing clouds.
Wednesday, August 10, 2011
Sunday, August 07, 2011
Lily's Baby Story
Lily told me a new story this morning. She wrote it out first, as you can see in the picture. (She knows about 1/2 of the alphabet, but seems to think when she writes it she has to fill up the page. She knows the direction the writing is supposed to go, but doesn't yet get that words beyond her name are made up of letters.) When she was done "writing," she retold the story to me.
Listen to the retelling here:
Friday, August 05, 2011
It's been a whole year...
It was one year ago that we found out.
We’ve been through hell and back, and found heaven. We know that we are luckier than others, and blessed beyond belief. We know that we are loved. We know that we are supported.
One year later, we know that Lily is vibrant, and we have every reason to believe that the largest part of our ordeal is behind us. She is good. Really good. And while we have to have MRI’s every few months for awhile, she is here. HERE is all that matters.
She is goofy and creative and funny and moody and all those things that a four year old should be. She explores, she investigates, she questions, and she thinks. With her brain. With her soul.
After a year, we’ve learned that the most important things in life are right in front of you. That NOW matters. That FRIENDS matter. That FAMILY matters. Nothing else. We are granted today only, and tomorrow doesn’t matter until it gets here.
We know the blessings that we’ve been given. We appreciate the gifts that have been granted and the prayers that have been answered. While we will never forget what we’ve been through, we will also never forget the support we’ve had.
We thank you all. We thank our friends and family. We thank the doctors and nurses. We thank the Disney Princesses. And above all, we thank God. We thank God. We thank God. We thank God.
We recognize the blessing we’ve been given, and we celebrate the God that granted our prayers. And we’d like to share Lily’s favorite prayer with you, the one she’s learned to recite on her own:
Angel of God, my guardian dear,
To whom God’s love commits us here,
Ever this night be at our side, to light and guard, to rule and guide. Amen.
She is our Angel. And we thank every single one of you who is reading this for being Angels in her honor. We needed you and you were there. And thank you for every single moment we’ve shared together.
We want to also share with you one of Lily’s favorite movie scenes from her newest favorite movie, Tangled. In this scene, the parents of Rapunzel are seen lighting lanterns on the birthday of their daughter who disappeared when she was young. Rapunzel knows the lights are for her, but doesn’t yet know all the meanings behind the lights. Lily might not know many of you personally, but you’ve been lights for her this entire year. And we want you to know how much we cherish and appreciate every single one of you. God bless you as much as you’ve blessed us.
Mike, Liz, and Lily- August 6, 2011
P.S. The picture above was from the Lawn Fete at St. Leo's a couple of weeks ago. The caricature artist captured Lily better than a photo could.
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