Wednesday, January 26, 2011

Lily's 8-Step Process...


Lily had Liz write down the following 8-Step process for making a carriage:
  1. Find a seat.
  2. Find wheels.
  3. Get babies.
  4. Find a prince.
  5. Find a queen.
  6. Find a king.
  7. Find a place to go.
  8. Get snacks.
Now you know.

Friday, January 21, 2011

Lily just did the cutest thing...

Every night, Liz and I go into Lily's room and sit with her while we say prayers.  Sometimes, Lily holds our hands, and sometimes she just giggles.  

Tonight, she fell asleep right as she laid down, so Liz and I whispered the prayers we always say.  As we were wrapping up the last prayer, Lily's little sleeping face smiled, and she opened her hand.

Liz put her finger in Lily's hand and Lily squeezed it, trying not to laugh.  She was so sleepy, and cute.

We've never been so grateful for these little moments. We cherish every one, in a way we never did before...

Posted via email from Michael's posterous

Monday, January 17, 2011

Lily's Party Recap...

We had Lily's party last weekend and wanted to share some pictures. We're working on sending out personal thank you notes as well, but wanted everyone to be able to see the good time we had! We also wanted to take this opportunity to thank everyone again. We are inspired and humbled by your generosity and genuinely appreciate the love you've shown our child. We can't tell you how much easier this process has been knowing that we've had the love and support of each of you. We know that there are others that aren't as lucky, and we are so grateful to have you be beacons for us on our journey with Lily.

We hope to do more in the coming months to benefit two programs at Children's Hospital that are so supportive of us each time we have to be there: Owen's Toy Box and the Child Life Team.

Thank you again from the bottom of our hearts. We love you all!



Saturday, January 15, 2011

Aunt Ginny Would Have Loved It!

Today we said goodbye to Aunt Ginny, who passed away just before Christmas. Her memorial service was today.

Lily was a very well behaved little girl during the service, but did something really sweet that we wanted to share.

At the end of the service, when everyone was paying their respects at Ginny's urn and saying a prayer, Lily walked up and said the prayer she made up, that she says after our nightly prayers at bedtime.

She whispered to the urn, "Princess, Princess, Princess, Princess, Princess."

Ginny would have loved that.

Also, at the breakfast following the service, Ginny's daughter Laura did a really touching thing too.  Ginny was an avid reader, and Laura & her new husband Patrick had bookmarks printed for everyone, with a quote from C.S. Lewis ~~ "We read to know we are not alone."  

Very touching day...

Posted via email from Michael's posterous

Saturday, January 08, 2011

Lily's Party


Lily's big party is tomorrow. We just wanted to take a moment to thank everyone for their incredible support these last six months. We still can't believe the outpouring of love and kindness both local and worldwide. We appreciate it ALL, more than any of you will ever know.

We're in a pretty good place at the moment. Just sort of playing the waiting game, again. The current MRI still showed a little anomaly, but we won't be able to tell what it is or whether it's a concern until March. So, it's not a concern until March. We're still dealing with some fluid on her scalp and we have a little nerve damage in her left eye that we'll have to have checked out. But we've been lucky and blessed and while we're still on the train--it's a more comfortable ride at the moment.

We look forward to our celebration of Lily tomorrow! And we look forward to all of you that are able to be with us...physically, and in spirit!

-Mike, Liz, and Lily



Lily's Party - special thanks to our neighbors, Paul and Nicole Blarr, who put the whole thing together in our honor. We love them like family! They ARE family!

The awesome photos are by Ali Beck at Ali Beck Photography...

Happy Birthday Siobhan!