Lily walks her new dog...

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Christmas pics so far!

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We're ready!

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Lily found the candy buffet!

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Princessaurus: A Digital Story from Lily

Open publication - Free publishing - More princessaurus

Eve of Christmas Eve pancakes!

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Santa on the FireTruck!

Every year the volunteer Fire Departments in our area host Santa on top of the Fire Engines and ride around the neighborhoods they support. (And that support them!!!) Our local Amherst Fire Department came tonight, and on Friday, we are looking forward to seeing Santa again on the Kenmore Fire Engine!

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Lily and the Singing Bears at the mall.

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Santa stopped in for a visit!!!

We were surprised tonight by a visit from Santa. He came to make sure Lily was being a good girl before he came back on Friday! Lily was THRILLED!!!

THE DIGITAL STORY OF THE NATIVITY

December Lily Update...

Today was Lily's follow up appointment. We had the MRI last week, and today we saw her team of doctors.

The MRI showed the same thing as the follow up MRI immediately after surgery.  There is still a tiny little piece of something in there, but the surgeon can't say for sure whether it is tumor, scar tissue, etc.  This isn't necessarily bad news, but it wasn't the news we were hoping for either.  The doctor clarified that this soon after surgery, the MRI results are still not perfect, and that the next one in March will offer a better comparison.  For now, though, the doctors are going to continue to monitor her with frequent MRI's (every 3 months).  

We also saw the oncologist and neurologist.  They took Lily through a series of cognitive and motor tests and she seemed to be doing very well.  The neurologist is scheduling Lily for and EEG, and if the results are good, we are going to be able to wean her off of the seizure meds.  Apparently, the meds cause wild mood swings--and here I thought it was just being "3 years old."

We also will have to see an ophthalmologist as Lily's left eye seems to have some nerve damage.  She can see out of it, but it drifts, especially when she's concentrating and focused. 

All in all, not too bad.  We're dealing with peripheral issues we can LIVE with, and that's fine.

The picture is of Princess Goofball on the doc's table.  She's a nut.

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Lily plays the drums.

We are out at Goodrich Coffee with our friend Karen's band.  Lily is tearing up the drums with her on solo!

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December Pics!

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Winter Fun!

Had about a foot or so of snow today...went outside to play in it!

Today's MRI... ;-)

Lily had her MRI today and everything went fine.  We were kind of in and out of there pretty quickly.  Last time--it took all day...this time, we were done by 11:00AM and on our way home.  We don't really know anything as far as results, but are taking no news as good news.  We have another appointment in a couple of weeks to meet with all of her doctors at once to talk next steps.  We're in a pretty good place right now.  She's acting like a typical 3 year old, and pretty much bouncing off the walls about Christmas coming.  I'm including her Santa picture here that she had made while Nana TT and Paw were in town.  

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