Lily's had a pretty good morning and slept well last night. No more seizures! They are changing the seizure meds and she's going to be on them for awhile, just in case. She is still favoring her left side, but she is starting to have a little more control over right-sided things...particularly being able to gaze/look toward the right.
She had a little broth and some noodles today and has had some apple juice to drink. She's been talking a little, mainly saying that she "wants her mommy" and for us to "stop doing that." The doctor wanted her to sit up today for a few minutes, so the nurse and I helped Lily into a chair and she sat in it for about 20 minutes. She watched a little bit of Diego but really wasn't all that "with it." She tolerated what we did, but then wanted to get back in bed and told us she was too tired to sit in the chair! She's still very groggy...
The doctor told us this morning that the MRI is showing a pretty successful surgery. Liz and I are cautiously optimistic, but know that we aren't out of the woods yet. He thinks they were able to get 99% of the tumor, though the MRI is showing the tiniest little piece of something, which they said could be a little piece of the tumor or could be a piece of tissue that will resolve itself over time. Whatever it is, it is being watched. We don't know about chemo or next steps in treatment, but we'll know more when the pathology report comes back. For now, she will be on seizure meds for awhile and her drainage tube is due to come out tomorrow. We will probably be in ICU for a couple more days. The surgery was a little more invasive than we thought it was going to be, so she has to be watched a little closer, but so far, things seem to be progressing well, and the doctor said that her responses are pretty normal after this type of surgery.
We will continue to update as we can and please know that we are so grateful for your prayers and support! It may take us awhile to get back to the way things were, but we're hoping that that is the direction we're heading in!
-Mike and Liz and Lily
4 comments:
I'm so thankful, I have no words at the ready. 99%!! Oh, Mike and Liz, consider this a big digital HUG from me.
Glad to hear the hope and faith shine through your post. I'm glad God is listening to all of our prayers. The smallest of good news is a triumph. I love you all. You're in my heart and on my mind. If there's anything I can do, please don't hesitate to ask. That laundry offer still stands!
Go, Lily! Hope we all get to see some of your colorful iPad creations. You have a lot of fans. You are my favorite princess. I am a friend of your mom and dad's and look forward to meeting you someday soon.
Heidi
Go, Lily! Hope we all get to see some of your colorful iPad creations. You have a lot of fans. You are my favorite princess. I am a friend of your mom and dad's and look forward to meeting you someday soon.
Heidi
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