The new improved Lily has enjoyed two days at home and is swiftly returning to the same old Lily we had before all of this started. Neurologically, the right side is a little weak, and there is a significant pocket of Spinal Fluid between her skin and scalp...but the doctors are just watching it for the moment and we're hoping for no leaks--which is what put us back in the hospital after the last surgery.
We don't see the doc again for a month, unless there are complications and for the moment, no talk of chemo or radiation. We'll need to have another CT scan and follow MRI's for years to make sure there is no growth or recurrence. We may have to do a little physical therapy if the weakness doesn't improve. The doctors and staff at Children's Hospital were absolutely wonderful and took very good care of ALL of us. We're grateful to be at this point in the journey, and over the major hump, even if we have years of repercussions to deal with. Hopefully, they'll be minimal, especially in relation to seizure disorders or developmental delays, but we're thankful that everything has gone the way it has.
Check out Lily's new fairy outfit from our friend, Barb DiTondo, complete with a new Princess crown from Mrs. Hardt's 7th grade class!
We had some friends visit today...Jan and Sarah. Lily showed them the iPad and how to work all of the different applications. I think Lily sold two iPads--I wonder if Apple will give us a kickback? It was nice to see Jan and Sarah - and I'll get to see them again when I go back to work next week! Thanks for the goodies, Jan and Sarah!
We also got Princess presents in the mail from our friend Erin in Virginia. Lily loved them and posed with her card! Thank you Erin!
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