We really aren't sure what to feel at the moment, but it's a combination of frustration, fear, relief, and a little numbness too.
Last week, Lily's follow up CT scan showed some irregularities with the tumor, and she had to have another MRI today. The MRI showed that the tumor had grown 10-20% in just the last month.
While the doctor still believes that it is a benign tumor, he is not going to wait before doing something else. We are having surgery on Friday to try and remove as much of the tumor as possible. If he gets it all, we're good to go, if there's some left, then we have to go through chemo as well.
The bigger issue right now is that they have to go through healthy brain tissue to get to the mass, so there is a chance that we will also be dealing with some sort of damage. He thinks that this could be minimal, but because of her age, she will most likely grow into new pathways to cover for anything that gets damaged during the surgery.
While we're scared about the surgery, we're also a little relieved that they are planning to go ahead and do something about it. The surgery on Friday will last around six hours.
It was very frustrating thinking we would just have to live with this monster sitting in her head--never knowing when this might happen. We kind of feel like we're better prepared to deal with it right now, in this moment, versus a surprise years down the road.
Our doctor is a capable, compassionate, and Christian man, and we trust him to do the best he can.
We continue to ask for your prayers, and know that we appreciate every single one. We'll update more on Friday or Saturday morning...but between now and then, we are going to be the most normal folks you've ever seen!
-Mike and Liz and Lily
11 comments:
Best wishes. We will all keep you and your family in our prayers.
We're praying for you guys.
"...be the most normal folks you've ever seen." What a humble, profound, lovely intention. Lots of love to you.
You will get through this because of your faith in God and the love, care, and prayers of your friends and family. I will be praying for you all, especially on Friday. Friends are angels who lift us to our feet when our wings have trouble remembering how to fly. You have so many friends that love you all. Good luck little Lily!
Jann McCombs
My thoughts and prayers are with all of you through this difficult time.
My thoughts and prayers are with you through this tense time.
My thoughts and prayers are with you through this trying time.
We are praying for you all. You all have been in our continual prayer. There is so much similarity in what you have posted to what we have experienced. The frustration and anxiety are real as is the faith that you have shared. We pray for healing, miracles, and strength...Alan, Myra, Angel, Thompson
HOLLA FISHERS!!!!!!
We wanted to take a moment to say that each of you are with us in thought and prayer as you venture down this journey in life with your Princess! We pray everyday for her and have passed along the requests to our family and friends.
We miss you all very much and wish only the best for each of you. May God grant you peace of mind and Princess Lilly a quick, safe, effective, painless, successful, w/o complications surgery!!!
Much love…we are here if you need us!
~Kristen & Company
I'll be with the three of you. I think of you often.
Denny
My thoughts and prayers will continue in your direction tomorrow and beyond. Lily will use all the princess strength to come out of this good as new and ready for the next party. Best wishes tomorrow and beyond.
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