It was two months ago today that we found out.
This rollercoaster seems to be less scary now than it was then, but we're still on the ride for awhile we think. We're waiting for the next CT scan at the end of October to see if the little piece of whatever is still there is active or not. For now, things are okay. She seems to be fine cognitively and has been even more verbal than before the surgeries. Her right side is a little shaky still, but not abnormally so, just every once in awhile. She has headaches every now and then, but she has quite a bit of fluid still lying under scalp, and it's tender. We're worried about the fluid, but the doc says as long as stays put and doesn't leak, we should be good. We kind of think we'll end up back at the doctor before our scheduled appointment, as she has been having a little fever the last couple of days, but seems to be acting fine. The fluid is also shifting underneath her scalp. We're trying not to be hypercritical about every little thing, but we're still watching her like a hawk.
Day to day has been pretty good though. We've been able to go out to eat, visit friends, and she's stayed with Grandma a couple of times while Liz and I get back into work mode. It's hard to believe two months have passed--what a whirlwind!
We sincerely appreciate every single prayer, note, gift, hug, and thought. We have been so blessed to be surrounded by the people we love.
Also, as an aside, our friend that keeps Lily some during the week (and will keep her again when she's all better!) happens to go to our brain surgeon's church. She said that she went up to him at church and hugged him and told him thank you. He responded that he was working with a higher power who was in charge of everything!
Thank you to everybody for the continued support...
-Mike, Liz, and Lily
1 comment:
My prayers continue.... It's wonderful to see the smiles! :)
Best,
Claire
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