We talked to the doctor today and found out that the tumor is benign. The preliminary reports last week were pointing in this direction, but we wanted to wait until we had proof from the report before put our eggs in that basket.
While that is good news, we're still just beginning this journey. We have to wait until the end of next week for the committee to meet and determine our next step and course of treatment. The tumor is not in a good place, regardless of what it is. It's wrapped around a couple of important structures and removal is dangerous and not our best option right now. There is a possibility of chemotherapy, and there's also a chance that they will do nothing and monitor with frequent MRI's until she's older.
The whole "until she's older" part is all we really care about. They can't tell us anything yet about longevity except that this is not the life threatening situation we thought we were in this time last week.
After we talked to the doctor today, we had to go back down to the hospital for another CT Scan. There is a small leakage of spinal fluid in her brain, which will eventually be re-absorbed, but is not great for the moment. There are a couple of places where it is collecting and they may have to go in and put an additional stitch in the incision if it continues to build up and/or leak.
We feel a great sense of relief knowing that the tumor is benign and slow growing, but are still apprehensive about whatever treatment options we are going to be dealing with. We know that the power of prayer works and we thank all of you that have helped us so far with your prayers, support, and presence. We sincerely appreciate our circle of friends and family!
We know enough now, I think, to be able to sleep. We can tackle anything that comes our way as long as Lily stays with us.
-Mike, Liz, and Lily
9 comments:
Mike I will continue to keep Lilly in my prayers. I can't imagine the emotions you are feeling right now. When you menioned her "getting older" my heart just broke and tears were falling. Every day is a blessing that we have our children in our lives.
Mike, Liz and Lily,
Thank you for sharing this information. So many people I know join me in praying for you all.
With love,
Claire Peters
Thank God. That is great news. We will continue to pray for complete healing.
Thank God. we will continue to pray for complete healing.
We are thankful the tumor is benign. You will remain in our prayers.
Barb and Greg
Mike,
I just read my e-mail and learned about what the three of you have been going through. I can't imagine that your wonderfully vibrant and full-of-life-daughter has had to endure all this. ALL of you are in my thoughts and prayers. Glad to know the tumor is benign and that Lily is acting like usual now that she's home. What a trooper! Let's make sure her parents are okay now, too!
With love,
Bonnie
Praise God! There are people praying from coast to coast - people you dotn know and will prob never meet....Now that I know what a blog is (Liz stop rolling your eyes and teh smerky smile) i can read along....
always in our prayers and thoughts...hugs to all
Love barb S
Mike,
As I've said before, if you need anything beyond prayers, just call me. I'll go grocery shopping, do some laundry, whatever.
I love you guys very much.
Kate
That's great news! My thoughts and prayers will continue to be with all of you.
-Karen
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